https://www.smaireland.com/blogs/news/blog-1 2020-12-09T09:37:38+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/welcome-article.jpg?v=1607506228 Welcome message from Karen Mannion, Chair SMA Ireland https://www.smaireland.com/blogs/news/sma-ireland-launches-nationwide-survey 2020-12-09T18:56:11+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/surveymonkey-logo.png?v=1607540171 SMA Ireland launches nationwide survey https://www.smaireland.com/blogs/news/sma-ireland-annual-meeting 2021-01-22T12:42:26+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/AGM_picture.jpg?v=1611317747 SMA Ireland Annual Meeting https://www.smaireland.com/blogs/news/ema-approves-third-sma-treatment-evrysdi-risdiplam 2021-03-31T10:05:21+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Everysdi.jpg?v=1617181521 EMA approves third SMA treatment, Evrysdi (risdiplam) https://www.smaireland.com/blogs/news/roche-everysdi-compassionate-use-programme 2021-05-11T16:35:56+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Roche_gene_therapy.png?v=1618407321 Roche Evrysdi Compassionate Use Programme https://www.smaireland.com/blogs/news/virtual-physiotherapy-workshop 2021-04-15T14:59:40+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/barefoot_physio_logo_1.png?v=1618407569 Virtual Physiotherapy Workshop https://www.smaireland.com/blogs/news/hse-to-reimburse-for-single-dose-zolgensma-gene-therapy-to-treat-babies-with-sma 2021-10-08T17:21:13+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Zolgensma.jpg?v=1633702389 HSE to reimburse for single-dose Zolgensma gene therapy to treat babies with SMA https://www.smaireland.com/blogs/news/sma-ireland-lodges-patient-submission-document-with-ncpe-regarding-risdiplam 2021-11-25T16:44:09+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Everysdi_c68c1abb-9805-4330-88a9-fbec958b6f24.jpg?v=1637858649 SMA Ireland lodges Patient Submission Document with NCPE regarding Risdiplam https://www.smaireland.com/blogs/news/call-for-sma-to-be-added-to-newborn-heel-prick-test-in-ireland-without-further-delay 2022-06-28T16:50:58+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Bring_SMA_to_Heel.jpg?v=1656431458 Call for SMA to be added to newborn heel prick test in Ireland without further delay. https://www.smaireland.com/blogs/news/call-for-sma-heelprick-pilot-programme 2022-12-07T14:46:23+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/SMA_IRELAND_EVENT__21.jpg?v=1670421030 Call for SMA heelprick pilot programme https://www.smaireland.com/blogs/news/sma-physiotherapy-masterclass-learning-from-europes-best 2023-03-28T13:38:18+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Irish_Physiotherapists_Attend_SMA_Masterclass.jpg?v=1680007098 SMA Physiotherapy Masterclass: Learning from Europe's Best https://www.smaireland.com/blogs/news/rare-at-south-dublin-libraries 2023-04-17T13:23:57+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/rare_image.jpg?v=1681574064 Rare at South Dublin Libraries https://www.smaireland.com/blogs/news/risdiplam-and-who-model-list 2023-04-22T11:43:09+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/WHO_logo.svg?v=1682159287 Risdiplam and WHO model list https://www.smaireland.com/blogs/news/ireland-continues-to-fall-behind-european-peers-in-the-heel-prick-test-for-newborns 2023-05-24T18:07:47+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Charles_River_Associates_European_Newborn_Screening_Analysis_May_20231024_1.jpg?v=1684948067 Ireland continues to fall behind European peers in the heel prick test for newborns https://www.smaireland.com/blogs/news/reimbursement-approval-of-evrysdi 2023-09-01T17:21:46+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Everysdi_08d41b0e-5fa1-4049-988a-4c4bc6c9f1c2.jpg?v=1693585306 Reimbursement Approval of Evrysdi https://www.smaireland.com/blogs/news/a-goal-for-sma-ireland-french-seniors-football-tournament-raises-1000 2023-09-09T15:43:55+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Carlos_football_tournament.jpg?v=1694270635 A Goal for SMA Ireland: French Seniors' Football Tournament Raises €1000 https://www.smaireland.com/blogs/news/update-on-scholar-rocks-apitegromab-trials 2023-09-20T11:07:26+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Apitegromab.png?v=1695204446 Update on Scholar Rock's Apitegromab Trials https://www.smaireland.com/blogs/news/biohaven-advances-promising-therapy-for-sma-patients 2023-10-02T12:17:41+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Biohaven_Pharmaceutical_Holding_Company_Ltd_Logo.jpg?v=1696245461 Biohaven Advances Promising Therapy for SMA Patients https://www.smaireland.com/blogs/news/sma-physiotherapy-webinar 2023-10-09T17:52:14+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Irish_Society_of_Chartered_Physiotherapists.jpg?v=1696870334 SMA Physiotherapy Webinar https://www.smaireland.com/blogs/news/newborn-screening-in-ireland-slips-further-versus-peers 2023-10-20T14:56:44+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/NBS_blog.jpg?v=1697805870 Newborn screening in Ireland slips further versus peers https://www.smaireland.com/blogs/news/sma-webinars-for-physiotherapists-outcome 2023-10-30T11:44:56+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Irish_Society_of_Chartered_Physiotherapists_dce87c27-9a65-4187-be68-a4fc633f2275.jpg?v=1698666296 SMA webinars for physiotherapists - outcome https://www.smaireland.com/blogs/news/sma-approved-for-inclusion-in-irish-heel-prick-test 2023-11-26T16:35:01+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/NBS_announcement.jpg?v=1701016501 SMA approved for inclusion in Irish heel prick test https://www.smaireland.com/blogs/news/sma-europe-launches-benchmarking-report-to-improve-care-for-adults-living-with-spinal-muscular-atrophy 2024-02-29T06:00:01+00:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Rare_Disease_Day_2024.jpg?v=1709041668 SMA Europe Launches Benchmarking Report to Improve Care for Adults Living with Spinal Muscular Atrophy https://www.smaireland.com/blogs/news/new-national-awareness-campaign-highlights-urgent-need-for-sma-newborn-screening 2025-10-22T11:59:41+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Early_Signs_of_SMA.jpg?v=1761130781 New National Awareness Campaign Highlights Urgent Need for SMA Newborn Screening https://www.smaireland.com/blogs/news/important-milestone-in-campaign-for-adult-access-to-sma-treatment 2026-08-22T17:51:46+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/HSE_drugs_group.png?v=1787417506 Important Milestone in Campaign for Adult Access to SMA Treatment https://www.smaireland.com/blogs/news/evrysdi-for-adults-with-sma-in-ireland-what-to-do-next 2026-09-12T15:56:04+01:00 weekly https://cdn.shopify.com/s/files/1/0507/5894/2901/articles/Everysdi_728ef00e-2fed-4c55-9f4e-eae2a792ca99.jpg?v=1789224964 Evrysdi for adults with SMA in Ireland: what to do next