News

Jun 28, 2022

Call for SMA to be added to newborn heel prick test in Ireland without further delay.

1 comment ·Nov 25, 2021

SMA Ireland lodges Patient Submission Document with NCPE regarding Risdiplam

Oct 08, 2021

HSE to reimburse for single-dose Zolgensma gene therapy to treat babies with SMA

Apr 11, 2021

Virtual Physiotherapy Workshop

Apr 04, 2021

Roche Evrysdi Compassionate Use Programme

1 comment ·Mar 30, 2021

EMA approves third SMA treatment, Evrysdi (risdiplam)

Jan 16, 2021

SMA Ireland Annual Meeting

4 comments ·Dec 09, 2020

SMA Ireland launches nationwide survey

Dec 01, 2020

Welcome message from Karen Mannion, Chair SMA Ireland