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News

Feb 29, 2024
SMA Europe Launches Benchmarking Report to Improve Care for Adults Living with Spinal Muscular Atrophy
2 comments ·Nov 26, 2023
SMA approved for inclusion in Irish heel prick test
1 comment ·Oct 30, 2023
SMA webinars for physiotherapists - outcome
Oct 20, 2023
Newborn screening in Ireland slips further versus peers
1 comment ·Oct 09, 2023
SMA Physiotherapy Webinar
2 comments ·Oct 02, 2023
Biohaven Advances Promising Therapy for SMA Patients
Sep 20, 2023
Update on Scholar Rock's Apitegromab Trials
Sep 09, 2023
A Goal for SMA Ireland: French Seniors' Football Tournament Raises €1000
Sep 01, 2023
Reimbursement Approval of Evrysdi
May 24, 2023
Ireland continues to fall behind European peers in the heel prick test for newborns
Apr 21, 2023
Risdiplam and WHO model list
Apr 15, 2023
Rare at South Dublin Libraries
Mar 28, 2023
SMA Physiotherapy Masterclass: Learning from Europe's Best
Dec 07, 2022
Call for SMA heelprick pilot programme
Jun 28, 2022
Call for SMA to be added to newborn heel prick test in Ireland without further delay.
1 comment ·Nov 25, 2021
SMA Ireland lodges Patient Submission Document with NCPE regarding Risdiplam
Oct 08, 2021
HSE to reimburse for single-dose Zolgensma gene therapy to treat babies with SMA
Apr 11, 2021
Virtual Physiotherapy Workshop
Apr 04, 2021
Roche Evrysdi Compassionate Use Programme
1 comment ·Mar 30, 2021
EMA approves third SMA treatment, Evrysdi (risdiplam)
Jan 16, 2021
SMA Ireland Annual Meeting
1 2 Next
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